Sunday, February 6, 2011

Patent Ductus Arteriosis

Ainsley has this. Every baby has this, actually, but it usually heals shortly after they are born. But since she is a drama queen was early, hers isn't healing.  Everyone is pretty sure that's why she really isn't making any progress.  She breathes way too fast and doesn't get enough oxygen without help from vapotherm.

So, she's going to have surgery.

I'm really nervous for her.  She's so little.  But I'm so glad that we are finally, finally doing something to help her progress.  She started out kicking so much ass, and things have just stayed status quo for a few weeks now.  You can tell it is work for her to breathe.  They say it will be a terrible few days, and then it will be better for her.  I think about them cutting her to get at her tiny little heart and...ugh.  It just has to be OK, ya know?

I don't mean to sell her short.  Ainsley is really an impressive tiny human.  She's nearly doubled her birth weight.   They've increased her feeds several times, and she tolerates them all perfectly.  She is so NOMable, it's borderline insanity. 

She's gone from this:
2 pounds, 3 ounces.
That's Mark's hand.
Her future's so bright, she's gotta wear shades.

To this:
Must stretch, in preparation of hefting around those adorable chins.
No, mom!  This is my bad side!
Stop trying to put that giant ass paci in my  mouth.
I'm looking at you, Nurse.
Oh, you know.  Just chillin before my surgery tomorrow.


--

One Year Ago:  Shucky Darn?
Two Years Ago:  36 Weeks: Just the Tip
Three Years Ago:Fun With Drug Paraphernalia

68 comments:

kate said...

She's such a little fighter she's just got to make it through. I'll be keeping you all in my thoughts, as always.

Kristin said...

She looks tough. (And absolutely adorable.) Sending you and your family continued thoughts and prayers!

Mrs. Higrens said...

Congratulations to Ainsley on a doubled birth weight!

Will continue to send good thoughts for you, Mark, Olivia and Ainsley tomorrow and beyond.

areyoukiddingme said...

Best of luck to your beautiful girl. I'm sure she will kick surgery's ass too. Try to stay calm, mama. She's a strong one!

Thinking of you and your fam...

SherilinR said...

she's fantastically cute and has positively chewable cheekies!

Just me said...

She looks great!!!!!

I'll be thinking about you all tomorrow and look forward to hearing about her successful surgery. :)

clearness said...

She is so beautiful. She'll kick ass in surgery tomorrow. Lots of prayers for her entire support team to make all the best decisions they can and to preform their best work ever. Lots of prayers for Ainsley that she'll recover quickly and become stronger so she can go home soon. Prayers for you and Mark and the entire family. Stay strong and continue to learn about and advocate for your little angel.

Kirsty said...

From one 32 week preemie mom to another, sending you lots of good thoughts. We had a PDA scare with my son as well, but fortunately his did end up healing without surgery. I'm sure your beautiful Ainsley will come through with flying colours!
You're doing an amazing job, Jenn...make sure you take good care of yourself too during this time!

Erin said...

She's such a little scrapper, so meaty these days! I'll be thinking about her tomorrow - and OHMYGOD how do you do it?? Stay strong mama. Loves.

Kelly said...

She sure is sweet!!!! Praying for a perfect surgery and tons of progress in the weeks to come!

s said...

from what i've heard, the pda surgery is easy peasy- done right at the bedside. i wish that our 'little' one was having the surgery. they gave her 2 rounds of indocin (sp?), and it got smaller, but it's still there. since she is asymptomatic, they are letting her be. grrr. ainsley is a champ- she is gonna rock that surgery! love and light to you all!

Three_Little_Beans said...

Good luck Ainsley....you are going to do great in your sugery!

Allison said...

Sending prayers for Ainsley and all of you! I'm sure it's scary, but hopefully it'll be what you need to get her home.

And congratulations on getting to double birth weight!

Laura said...

Will be thinking of all of you tomorrow. Ainsley is strong and adorable and will kick the PDA in the ass. And I see she's on a bubble now! That's awesome!

erin said...

I will be praying for her and thinking about you all day tomorrow. Please let us know how awesomely she pulls through just as soon as you can so that we on this side of the blog aren't too worried for too long. Our hearts are with you.

Summer, Justin, Blake, and Sutton said...

I've been a blog stalker for a looong time ... just wanted to let you know I'll be praying for your sweet Ainsley!

Sarah said...

She is absolutely adorable. And most definitely a fighter.

Laurel said...

Sending lots of good thoughts and prayers to Ainsley and all of you. I hope she does wonderfully and improves speedily afterwards. She is beautiful.

Amy said...

Best of luck to the little one. A ligation is no picnic, but if they can't close it pharmacologically and she's not doing well clinically, then it's her best option.

She is adorable...

Mom of the Twinkies and Tot! said...

From what I've heard, PDA surgery among preemies happens quite often, so I'm sure the docs are quite good at it. I, however, can't imagine thinking about my child having surgery on her tiny little heart! I'll be praying for you & Ainsley tomorrow! She's quite a cutie...I love the first two recent pictures of her best...the lifting the arms & the "No, mom" ones! Isn't it funny how a preemie can have a double chin!?

HereWeGoAJen said...

She is such a genius baby. :)

I'll be thinking about you guys tomorrow and sending lots of love.

Marisa said...

Best of luck to Ainsley for her surgery!

Courtney said...

Praying for Ainsley- successful surgery and swift recovery!

lparsons15 said...

She is absolutley beautiful! Sending lots of positive vibes your way for your sweet baby girl for a speedy recovery.

Alison aka Baby B said...

Ainsley is going to rock her surgery tomorrow! I'll be thinking of you all tomorrow.

Greta said...

Ahh, she is adorable!
I think she'll kick a tomorrow too!

Allison said...

My thoughts will be with you all tomorrow! Go get 'em, Ainsley!

K said...

thinking of you guys!!! she's such a big girl now :) she's gonna do great! prayers for a swift recovery

Editdebs Talks said...

Will be praying for you all.

Another Julia said...

Go, Ainsley! Praying for complete and rapid healing. She is beyond beautiful.

Michele said...

So. Amazingly. Adorable!!!!!! Seriously, amazing. :) Go Ainsley!

Monica said...

Praying for a dramaless surgery and peace for mama. She is beautiful!

Erin said...

Pumping the best vibes I can muster through the fibers and webs and inter-whatevers that connect me to your family. Ainsley is clearly amazing. She'll do great.

For realsies.

Vaso said...

She'll do great!!! We will be thinking of you tomorrow. Good luck with the surgery and she'll do great. {{hugs}}...

Noelle said...

She is beautiful, and such a fighter! She will pull through this, even though it is going to be hard and scary. And just think...when this is fixed, she is going to do SO WELL, and she will be able to come home. I'll be thinking about you guys and saying a prayer for her.

Stephanie said...

Many thoughts coming your way. She's such a champ, I know she'll be just fine.

Mel said...

Thinking of you and Ainsley. The PDA surgery on a preemie is pretty routine for those docs. But when it's your tiny little baby that they're working on. Scary. She is adorable as can be and very impressive!

sassyshell said...

Thinking of you and your little girl and sending all my best. Take care of yourself!

Emily said...

I will be thinking about your little cutie pie all day tomorrow! Thinking good thoughts all the way!

Stace said...

She's so cute- I'm so happy to finally see pictures of her! :)

I'm surprised that they've let the PDA go on for this long. Colby had PDA issues too, but within the first week he was given multiple courses of indomethesin to close the PDA. When it didn't look like that was going to work surgery was scheduled when he was 7 days old. (Thankfully, in an amazing turn, an extra course of meds closed it literally hours before surgery) They wouldn't try feeds or take him off of breathing support until his PDA was taken care of. It always amazes me how different NICUs can function... but I guess it doesn't matter as long as the babies come out healthy in the end! :)

Best of luck to little Ainsley and YOU. :)

Chris and Annalisa said...

We're keeping her in our prayers! I hope this surgery helps her progress & breathe better. What a sweet heart she is, and such a fighter!

Nora said...

Hope all goes well for you guys and that Ainsley puts up one hell of a fight!

Los of prayers for you and yours.

Bekah said...

OMG, sweet nommy baby!! She's so sweet and adorable, Jen, and I really do mean it. I love the double chins. I'll be keeping y'all in my thoughts and prayers while little Ainsley goes and has her surgery fixer upper.

Jen Nelson said...

Awww, she is SO sweet!!! I'm sorry you have to send your baybee to have surgery. How scary! She will kick ass! Sending lots of prayers for her, the surgeons and of course you and Mark.

Hang in there tomorrow mama!

Katie said...

Hoping everything goes great with Ainsley's surgery today.

MagaliesGarden said...

Prayers going to Ainsley and her family for a quick and successful surgery. Go Fighter Go!

Brooke said...

Good luck to Ainsley today. I'll be thinking of you!

krlr said...

Best of luck! I've no doubt she'll kick butt.

Brenda said...

Are you kidding me? Ainsley is such the fighter! Kicking butt is getting to be old hat for her. I hope the surgery goes great and that she continues to impress every doc she meets. Thinking of you all.

lifefamilysanity said...

Holy fuck, Jen! I cannot even imagine the level of fear. Please know your Ainsley is being loved by people all over the internets and we're all cheering her on. (And you, Mark and Olivia, too!)

Michele said...

Keeping her in prayer and having my NICU drama queen and king do the same!

Dre said...

She is most NOMable! Yummy! She does kick ass, and she will rock this surgery. Any surgery on babies is scary (hell, the damn ear tubes freaked me out), so just do what you can to make it through. I will be praying for her to get back to tough-ass shape to run that NICU!

Kerrik said...

She looks pretty strong and strapping to me. She has survived so much so far, I believe she will come through this like a champ!

raisingmiles said...

Ainsley will continue to kick that ass!

Teresa said...

Wow, she is so unbelievably beautiful and powerful. Thoughts and prayers with her and with you and your family through the surgery.

Hairy Farmer Family said...

Oh, Jen. Tough times for everyone. Thinking of you tomorrow! It's a surgery they do a lot of, so they shouldn't have any surprises - and Ainsley looks like she can cope with anything, bless her. Those chins...! Yes. Nommable in the extreme.

Lukas said...

she`s adorable... we`re rooting for you Ainsley!!! You go girl!

s. said...

Thinking of you waaaay to frequently seeing as how you are a stranger, but wanted to let you know that I will be thinking about all of you as Miss Ainsley goes through surgery tomorrow. All my best for an uneventful procedure and a speedy recovery.

Erin said...

She's getting so big - what a little fighter! Ainsley, her doctors and all of you will be in our prayers tomorrow.

Nic said...

She is doing so good with her growth!
I am sorry she is having to have this operation. I hope all goes well. She is such a fighter
x

Kristy said...

Saying a little prayer for her today, and gosh darn she is just so cute.

Jeannie said...

She's a tough little cookie... She will do great! She is mighty adorable too ;-)

Kahla said...

She is just precious! I just read this post and saw her surgery went well so I'll be sending tons of prayers for a speedy/safe/uncrazy recovery!

Momma Chaos said...

Good luck! She looks amazing! My 4yr old also had surgery for a PDA (and vascular ring) , it's scary sending our itty bitties into surgery!
Hugs!!

Clair said...

She looks like a little slice of Heaven! I'm a day behind so I see that she has come out of her surgery. Praying for a speedy recovery!!

ericadouglas said...

She's SO CUTE!!

CurlyGirly said...

She is such a little cutie pie! I'm glad her surgery went well. I hope she has a speedy recovery.

Angie said...

Ainsley is super cute! I will say that when I worked in pediatrics, the PDA surgeries always went really well. The first few days are super sucky and to Mom and Dad probably the first week or more seems sucky, but babies are so resilient!